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Remember blogrolls from back in the early 2000s? Those little columns in your sidebar listing all the blogs you followed, from your Internet friends in Baltimore, Boston, and Oakland to the Norwegian dude with unparalleled knowledge of caffeinated beverages. Blogrolls were a window into your soul, showcasing your interests, political leanings, and your allies and haters. But blogrolls died an ignoble death, replaced by Facebook, Myspace, and Twitter.

Now, Facebook is a place for old people to complain about schools forcing kids to piss in litter boxes, and Twitter is overrun with spam—AI spam, crypto spam, self-publishing spam, and horny posting spam links to the spicy 🌶 site. Gone are the days of the guy eating beans while watching Cars 2 or the monkey in a jacket at a department store, or the runaway llamas. Social media will never experience moments like that again.

So how do we get our information now? Are we supposed to read newspapers? Watch local television? Talk to people and learn about the world by engaging with it? Nuts to that! We want information shot into our faces, like a drink from Mr. Firehose on the Stanley Spadowski show. Enter RSS. The blogroll's back, baby, and it's back in a big way.

I need to get drenched by the news hose, so I've spent most of the day fiddling with RSS servers, flip-flopping between FreshRSS and Miniflux. FreshRSS is more full-featured, but Miniflux's simplicity and ease of quickly sharing to Pocket on Android has won me over. For now, anyways. Here's my current RSS workflow that gets me my article fix:

  1. Subscribe to RSS Feeds: I subscribe to feeds in Miniflux— news sources like the New York Times and NPR, sports blogs, culture magazines, etc. Anything that seems interesting and that has an RSS feed gets added. Most of them I never actually read anything from, but I stay subscribed until the feed breaks or stops getting updated.

  2. Notifications Off: I keep notifications turned off. I will decide when I get drenched by the news hose.

  3. Scroll and Save: I scroll through headlines on my phone, usually while I'm scarfing a bagel for breakfast. If I see a headline or blurb that interests me, I save it to my Pocket account.

  4. Read on E-reader: Pocket sends it to my e-reader, ready for me to read at my leisure. (Although I usually don't actually get off my phone to read on my e-reader, the potential is there for me to be able to read without the distraction.)

Today was one of the days when I actually spent some time reading instead of scrolling. And thanks to my RSS feeds, I've read about the effectiveness of read-alouds for older children, Willie Mays, Rat Boys, and even a poem about Trans Pikachu. I also saved an article on how to handle my sexy nemesis—a deeply concerning issue that I need to read about before it's too late.

Whether I'm at the dentist's office, waiting in the Chipoltlane, or sitting alone in the woods, I can read RSS feeds, or at least skim headlines and save to read later. I am never without my precious articles. The news hose is constantly spraying. The world is at my fingertips, largely free of ads and spam and paywalls. This is the future, and it is also the past. It's the way forward and the way back.

I am alone. The high schoolers who were camping across the way from me abandoned camp early. They were complaining that it was hot, that there was nothing to do, that they had no signal, that they were bored, so they packed up their dad's truck, and left a day early. Every campsite is marked with the last name of person staying there and the length of stay. They arrived yesterday were supposed to leave tomorrow, just as I am, but they are cowards, they are fools, they are weak. And now they are gone.

I am alone in the tent camping part of the state park. There are only three tent campsites. They are off a mountain biking trail that connects to the woodpecker trail and the beaver trail on opposite end of the park. It's isolated. Other than the other tent campsites, you can't really see anything through the woods. Sometimes you can hear the engine of an old motorhome rumble by up on the RV loop. But other than that, it's just me, the deer, the birds, and this asshole yellow jacket that's stuck inside my gazebo. He can't get out. He doesn't understand the door is wide open. Why do you keep flying the other way, stupid? How can these creatures have existed for millions of years and not be able to escape a gazebo with the door open? But I digress.

Now I'm alone. And the kids leaving got me wondering: why am I still here? Why am I here in the first place? Why did I come out to the middle of Georgia on days when it's supposed to be 96 degrees, not a cloud in the sky, 60-70% humidity? Why did I come and choose to sleep outside, under the stars, surrounded by bugs and lizards and asshole yellow jackets, who are, again, still stuck in my gazebo? Why did I do this?

I know why I did this. It's embarrassing. I'm trying to prove myself. I want to prove that I can do fun things. I can be adventurous. That I can make good use of a DSLR camera. And so months ago, on a petty whim, I bought a tent. I bought a gazebo. I bought a folding army cot, a sleeping pad, a sleeping bag, and a little mallet with a hook at the end to pull out tent pegs that I don't really need because I just use my foot. But whatever, at least now I've got a mallet to protect myself Old Boy style.

I bought all this stuff and now I've got to use it. We have four day work weeks in the summer so I figured I'll use those to go camping. Friday through Sunday. This is my first week. It's the first time I've been camping in probably 30 years. I have no experience doing this. I have no wilderness skills, no survival skills. I have a Leatherman and a cool little EDC flashlight. Other than that, I'm helpless as a babe in the woods. (Not that I'm saying that I'm a babe, but I kind of am. I'm kind of hot stuff. And I'm in the woods.)

But here I am, alone. Sitting in the woods. And reader, let me tell you something: I am having the time of my life.

This is super relaxing. I'm recording this on a voice recorder that's not connected to the internet. The service out here is spotty.  When I walk up towards the front of the park I get a few bars. But other than that, nothing. I'm cut off from the world. I'm isolated. I'm writing. I'm reading. I'm walking through the forest, tripping over roots. Seeing alligators. Seeing turtles. Scaring beavers and deer. This trip has been rejuvenating. 

It's something that I've already started trying to figure out how I can do it better. I need to pack better, for one thing. Too many bags. I need a little side table which I've already ordered. I need a fly swatter or something to kill these bugs that get inside my gazebo and won't get out. I don't want to kill you, Yellow Jacket, you deserve to live just as much as I do, but seriously, I want to sit in my chair inside the gazebo and drink a Coca-Cola Classic. That's what I'm here to do.

But really, what this has shown me is that I can disconnect, I can be on my own, I can thrive on my own. It's one of the things I worry about having Parkinson's. I fear that there will come a time when I won't be able to live on my own, where I'll be in a home, having someone feed me pudding. Not yet, though, even though my hand is shaking uncontrollably as I hold this voice recorder and I almost fell flat on my face walking across the boardwalk today on the woodpecker trail.

I've  still got it. I can survive a weekend in the woods, or sort of in the woods, in a state park version of the woods. I can rough it. I can camp. I can use my not-so-fancy-anymore DSLR camera to take mediocre pictures. I can write. I'm working on a photo essay of my little adventures like I used to do back in the day.

As much as I like to be by myself, I've had trouble being alone the last few years. I had some personal issues I needed to deal with, then medical issues, now personal issues again. But this camping thing, I'm digging it.

Next week I go up further north, up to a campsite that's on the banks of a lake, or maybe it's a river. I don't know, some sort of water. better chance of getting devoured by an alligator. Then the week after that, it's a solo trip to Disney World before going to a conference in Orlando.

Next week, it will be four years since I moved to Georgia. Things did not go as planned, at least not for me. But four years later, I'm finally doing the things I'd planned on doing when I first moved here. For the next three weeks, I'm going to truly enjoy life. Hopefully, the good vibes will continue after three weeks. Or I'll lose my house and have to start everything over again. One or the other.

#1000WordsOfSummer

It seems like only three years ago I was able to walk in the woods with ease. In fact, it was three years ago. I walked in the woods all the time. Then things started getting harder, I started getting  slower, and walking through the woods became more tiring. I thought that I was getting old, that I was getting fat, that my knee was acting up on me, but it wasn't any of those things. It was #ThePark showing its signs.

Now, I very rarely walk in the woods. It's hard for me to negotiate the trails. I have to keep a close eye on where I step. One of the fun parts of walking through the woods is looking around and seeing what's in the woods. But now I have to watch my step to avoid roots and sticks and branches and rocks and other things that my foot could clip as I'm Frankenstein clomping through the woods. Yet here I am, 13 months after being diagnosed, in the woods at a state park, scaring deer and trying to get mauled by an alligator.

I haven't seen an alligator, and I'm already exhausted after barely making it halfway around the lake. I probably should have gone hiking before I set up my tent, my gazebo, my cot, and chased a bee out of the gazebo. I should have drank more water instead of just drinking coke.

That's all I've had today. Just a coke. And yes, I know you're saying, but Shawn, isn't coke nature's water? And yes, yes it is. But sometimes when it's really hot outside, you need regular water to amplify the power of the coke. The life-giving energy of Coca-Cola Classic. I've had my coke. I've had my water chaser. Now I'm wandering through the woods, hoping I'm going in the right direction.

Hills. Why are there hills? This is supposed to be the low country. Low as in no hills. And here I am, walking up a hill. Exhausted. Wondering how long it is until I get to the  other side of the lake. That's kind of the biggest challenge of walking with Parkinson's. It's not that I'm always clumsy. Sometimes I'm clumsy, when I'm not paying attention. I don't always trip over cords or seams in the carpet or sticks or roots or stuff like that. But the thing is, when I get tired, like I am right now, I slow down even more. And my walk goes from a steady clomp to a plod. It's a cumbersome lumbering. I'm endlessly plodding through the woods, feeling like George O'Brien in Sunrise.

There are benches throughout the trail, always at the top of the hill. But I know if I sit down, I'll have a hard time getting back up again. So onward I plod, hoping that my slip-on Skechers with soles made of Goodyear tires or something like that will give me the traction I need to finish this accursed hike around the lake.

Why am I doing this? To get the attention of someone who probably doesn't even think about me anymore? To prove that I am still healthy? Out of boredom and a desire to be alone and just read and write? I don't know. I hiked the entire Beaver Trail and I barely caught a glimpse of a beaver. A fleeing beaver, running away to its little beaver hideaway as it heard me arrive. No beaver for your boy today, only exhaustion and pain. As it always will be.

#1000WordsOfSummer

The school where I normally work is having its air conditioning replaced, so I've been exiled to a middle school on Savannah's south side. This means I must find new lunch joints. No longer do I have easy access to Chipotle, or a barbecue restaurant, or the Arby's with the old-timey Taco Bell sign in its parking lot.

Driving to work I saw a pizza place. I decided I could go for some pizza. Let's see if they sell it by the slice. I pulled up. The sign said they did sell pizza by the slice, and also it claimed to be authentic New Jersey pizza. Now I lived in New Jersey from 1991 to 2004, and I ate a lot of pizza. Hillsborough, New Jersey had a lot of pizza restaurants. From chain restaurants like Domino's to Alfonso's and Alberto's and Victor's and Victor's 2 and Frank's In other words, I am experienced with pizza. Some would say that I'm a pizza snob.

I don't eat toppings on my pizza. Only cheese. Because pizza is perfect the way it is. It doesn't need toppings to defile it. Also I believe that there is no good pizza outside of the tri-state area. And really it's outside of New York, New Jersey. Connecticut pizza doesn't deserve to be considered a part of good pizza. Especially when they put seafood on it.

So I went into this little pizza restaurant. The woman, the only woman working there, coughed into her hands and made no attempt to even pretend like she was going to wash her hands. This is a good sign. Good pizza restaurants are filthy, grimy, greasy, disgusting little hovels that only exist because of the quality of bread and cheese and sauce that combines together to make a beautiful slice of pizza.

I ordered two slices of plain and a drink. She rang me up and said the price was $6.40. I was flabbergasted. My order at Chipotle is almost $20 now. A meal at Burger King is $12 or $13. Six dollars for two big slices of pizza and a refillable coke? Insane. Madness. I don't know how they can stay in business.

The pizza was okay. It's not great pizza. Like I said, there's really no good pizza outside of New York or New Jersey. Maybe I'm just a pizza snob. But cheap pizza and the idea of eating slices of pizza for lunch, slices that have been tossed into an oven to get way, way, way too hot before being served, of sitting in a dingy little booth in some scummy little place in a nondescript strip mall, it brought me back. It sent me back through time, through space, through the corridors of memory, reliving all my pizza experiences, seeing them flash before my eyes. Now here's a ranking of the pizza restaurants in my memory.

Worst pizza: Two-for-One pizza. A pizza restaurant in or around New Brunswick, New Jersey. It was popular amongst the clubs at Rutgers because you got two pizzas for one, exactly as the name said. So if you were having a pizza party with your geology lab group after a field trip, you would get two for one pizza because you get twice the pizza for the same price. The only problem is Two-for-One pizza barely qualifies as food. I honestly believe if you ate the box instead of the pizza, you wouldn't be able to tell the difference. And when it was cold, it was even more inedible. They should make a show like that hot wings show where people have to eat cold two for one pizza. They will die. They will not survive.

Second worst pizza: Pizza and Pipes in Bellevue, Washington. A restaurant that is now, I believe, a parking garage. But back in the day, in the mid to late 80s, it was a place where you'd go and they'd have a bubble machine and some dude would play the organ and then he'd ask you to come up and you'd play the maracas and the tambourine and they had the Star Wars game where you went into the Death Star and they had Joust. So it was a good time. But the pizza was not. Pizza and Pipes still holds a place in my heart, though, as a great restaurant, destroyed by consumerism and the ever-growing sprawl of Seattle's east side.

Next worst pizza: Every other pizza restaurant. They're all bad. People come up to you and say, oh you have to try this place in downtown Phoenix. Oh it's so good you have to wait in line for 45 minutes but they have the best margherita pizza and it's trash. It's California Pizza Kitchen, thin crust, frozen pizza trash. It's garbage. It's crap for people from Wisconsin who don't know what good pizza is. People who have never been to New Jersey. People who have never been to Frank's Pizza. People who have never had a slice. They are fools and their pizza is for fools.

Sardella's pizza. Not that it was good. It's not. But when I worked as an elementary school custodian, every Wednesday was pizza day. They'd order a bunch of pizzas from Sardella's and the kids would get their pizza and they'd drop it on the floor. Then they'd start crying and say, “Shut up. I'll get you a new slice of pizza.” So I'd get them a new slice of pizza. And then they'd still be crying because I told them to shut up and I'd be like, “I'm sorry. I didn't mean to tell you to shut up. It's just, I don't know how to talk to kids.” And they'd be like, “what?” And I'm like, “Yeah, see, exactly. That's the point I'm trying to make.” And so then I'd give them a slice of pizza

But we always had pizza left over. The cafeteria manager was supposed to sell the pizza for 50 cents a slice. However, she did not sell the pizza for 50 cents a slice. She gave it to me. So I went home to my one bedroom apartment with two boxes of mediocre cheese pizza every week for the year that I worked as a cafeteria custodian. Have you ever seen my body? Now you understand. It's made by Sardellas and Mountain Dew.

Speaking of 50 cent pizza that's not very good, Marco's Pizza, the pizza restaurant across the street from the apartment where I lived for two years in college. After midnight on weeknights, 50 cent slices. Not very good slices, but they'd go fast. You'd go in there with all the drunks, get your slices, eat them on the walk home, then watch Conan and go to bed.

But the fun thing about Marco's was that in the summertime, when most college students weren't there, the pizza was actually really good. Like when they're not trying to turn out 50 cent slices for a bunch of Rutgers skanks and frat boys, when they actually had time to make the pizza, it was good. It was a special treat. A summertime pizza. Existing only in the liminal space between semesters. When New Brunswick was quiet, peaceful. When parking was plentiful and the pizza, freshly made and delicious.

Next on my list is Peter Piper Pizza. Pizza in Arizona is often alliterative. Peter Piper Pizza, Hungry Howies, things of that nature. Peter Piper Pizza, I remember because it was where my grandparents stayed in their motorhome when I went out to go to spring training during college. And yes, I spent my spring breaks in college sleeping on the couch in my grandparents' motorhome so I could watch the Mariners lose to the Kansas City Royals and then have Peter Piper Pizza. What I eventually learned, though, is that Peter Piper Pizza also had a lunch buffet. Much like Pizza Hut, but better. So for under $10 you could get all the pizza you wanted.

During my career as a teacher in Arizona, I would often go to Peter Piper on half days when we had a long lunch break. It was good. It was always good. Eating until you were literally, physically incapable of consuming any more bread and cheese. Feeling disgusting, physically, emotionally, and spiritually, for the things you've done to your body with a coupon for a $6.50 buffet at Peter Piper Pizza.

Next on the list, Italian Pizzeria 3. I think that's what it's called. That's what I call it in my mind. It's a place in Chapel Hill, North Carolina, where I went with my friend after his wife left him. It was like walking into a central New Jersey pizzeria. The two men who were serving food were clearly Italian. And there was an old woman in the back, and when they finished serving your food, the men and the old woman would just scream at each other in Italian, just yelling, constantly. Then they gave us a free slice. That's how you know it's a good pizza, authentically Italian pizza: when you have people yelling at their grandma while they serve you food. When you're here, you're family and whatnot.

And the best pizza restaurant: Frank's Pizza. Not the one in Manville, the one in Hillsborough. The original, I think. Frank's Pizza is fantastic. The people that work there: borderline offensive Italian stereotypes. They say “We make you a pizza pie in 15 or 20 minute” And the pizza was good, so good.

The extra cheese had so much cheese on it, you would take a bite and you would just pull off a layer of cheese and you would still have more cheese than most pizzas have on it. There was so much cheese, so much bread, so much sauce. So decadent.

With every pizza they gave you a coupon, and if you got so many coupons you got a free pizza. But the thing was, we always ordered pizza when my parents worked late, so I'd call it in from home and my parents would pick it up on the way home That meant they never got the chance to use the coupons. So we had a drawer in our kitchen that just filled up with Frank's Pizzas coupons. They had no expiration date. When my parents moved out of their house and moved to Arizona, we found the drawer full of pizza coupons. So I did what any normal 26-year-old man would do: I demanded that my coupons be honored, and every week I got a free pizza or two Frank's Pizza. I'd walk in, they'd recognize me, they'd say they'd make me a cheese pizza pie, 15 to 20 minute.

I would wait, patiently, sometimes wondering if I should ever try the ziti or lasagna. But no, why would I mess with perfection?

There will be a time when I go back to New Jersey. And when I go back, there will be one place that I visit. One place only. It'll be Frank's Pizza on Route 206 in Hillsborough, New Jersey. If it's still there. If it's not still there, I'll be heartbroken. I'll be crushed. It'll be the worst thing that happened to me, worse than getting Parkinson's, worse than having the small cat taken from me. It'll be truly a moment that causes me deep existential pain, and I'll probably become some sort of supervillain. Please don't take my good pizza from me, it's all I have.

#1000WordsOfSummer

I don't know if they are, but it feels like it. When I'm walking. When I'm trying to sit still. Especially when I'm eating. I feel that everyone in the room sees me dropping food on myself. Spilling the spaghetti. Dropping my Coke. French fries on the floor. Things of that nature.

You could say I'm paranoid. You could say that I'm seeing things that aren't really there. But it's how I feel. Because it wasn't always like this. I've always been a thoroughly forgettable dude. Tall, but not unusually so. Unattractive, but in a nondescript way.

But now, thanks to #ThePark, I think I stand out more. I shake. I clomp around like a Frankenstein. I wasn't big into going out to eat before, but now I rarely ever go out. Even when I travel, I've started getting takeout more often than sitting in a restaurant.

I feel awkward in public, more so than when I was just a weird goon looming in the background. But now, I can't just joke and say, oh, I'm just a weird, dude. I'm just a goofy goon. Now, feel I have to explain myself.

There are times when I wish I had a little card that I could hand out or a sign that I could place next to my table at a restaurant that explains that I have Parkinson's and that is why I'm spilling food all over myself. It's not because I am a baby. I'm a grown ass man. With a shitty disease.

Again, I am not a baby. Yes, I am messy, sloppy, and covered in spaghetti sauce. But I am NOT a baby.

When I am covered in sauce, or when my hand shakes so much I can't read the poem I'm holding, or when my phone starts buzzing to remind me to take my meds, I feel obligated to explain what's happening, that if I don't explain things, all people will see is me shaking or spilling or clomping around without swinging my arms.

Whenever I explain my situation, people are usually surprised. My dad didn't even believe me when I first got diagnosed. Parkinson's associated as an old person's disease and I'm not old enough. Most of the time it’s only my right hand that shakes. I don't fall down. I very rarely stumble, although I did trip over a cord today.

It confuses people. Because I'm not your typical Parkinson's patient in their eyes. I feel weird explaining the complexity of the disease because I'm not a real doctor and I know I come across as pedantic.

I don't know how much detail to go into. Do I tell them it's a dopamine deficiency and that my drugs encourage compulsive behavior, so I spend too much time online shopping? That I don't want to go to Vegas anymore because I'm afraid I'd lose my house on a video poker machine in the high limits room at the Park MGM?

Do I tell them about the other weird symptoms? That sometimes I talk in my sleep. That I wake up screaming and kicking. That I don't poop every day anymore. Is that weird? Can I get into a discussion about how often people poop and how my poop cycle has changed now that I have Parkinson's? I think that would be weird. But it's a serious issue because sometimes I don't poop and then I poop a lot.

I don't know if I should tell them how difficult it can be for me to do certain things. I don't like to wear a tie anymore because it's tough for me to tie a tie in the morning before my meds have kicked in. Putting on socks is just a pain. Like who invented socks? It's too hard. Why can't they be more simple? Why are they so tight? I even got a little device that is supposed to help me pull my socks on, but I can't figure out how to use the thing. It's too complicated. I think I put the sock on it and then I slide my foot through it or something like that. I don't know. It confounds me. So I buy certain sock brands because I know that they're easier to get on. Polo socks are nice. Versace socks are garbage. If you're reading this, Versace: make better socks. Your socks are trash. I hate them. But I'll still wear them when I want to look extra bougie.

It's tough not knowing how much detail to go into. I don't want to sound like I'm complaining. I don't want to sound like I'm asking people to pity me. Because in fact, I want the exact opposite, I just want them to understand what's going on. But not to have to say, oh let me help you with that. Or do you need help with this?

I don't need help carrying my plate. I might almost drop it, but I generally don't drop it. I just almost drop it. I can still move boxes. I can still lift tables. I can still move furniture and do all the stuff that I became good at when I toiled at the mall or as the elementary school trash man. I can still do most things. I just don't like to eat spaghetti in restaurants. Because it gets all over me. And I don't want people looking at me, thinking I'm a baby. I'm not a baby. I'm a grown man.

#1000WordsOfSummer

I drive an electric car. Not for any environmental reason (all cars are environmentally devastating), but because I thought it would be neat. Most of my driving is short trips, and when I bought the car, I thought I was done taking road trips. Two years later, I find myself driving to Atlanta several times a year, and this month alone, I’m going to Atlanta, two state parks, and Orlando. All in a cheap electric car with a small, slow-charging battery. I drove from Savannah to Atlanta earlier today, and it went about as well as could be expected.

The Route

My car claims to have a range of 250 miles, but that’s driving the speed limit in perfect conditions. My house to Atlanta is 243 miles. Mostly freeway. I don't get anywhere close to the estimated maximum mileage on a trip like this. I have to stop at least once to charge along the way. But I actually like to stop twice, just in case something goes wrong. It's one of the things that comes with owning an electric car: range paranoia. There was one trip where I tried to make it on just one charge, but when I got to the charge station, ¾ of the chargers, were out of service and I ended up having to wait almost an hour just to get a charge. So now I always make that extra stop, even if it's just for 10 minutes to charge while I get a drink or a little snack.

The Stops

There are basically two places on the I-16 for me to stop and charge before I reach my main charging point. One is at a gas station. It has one charger. The other is at a Burger King. It has one charger. They are about 45 minutes apart, each directly off the freeway. Today when I stopped at the gas station the charger was in use. An old Chevy bolt. I think. The doors were open and the driver was sitting on the ground, head in hand, The telltale sign of a long charging session. When you drive one of these cheap Chevys, it's not like the Kevin Bacon commercials where you get 60% charge in 15 minutes. It takes a long time to charge a cheap EV. Sometimes there's nothing to do other than sit on the ground. I've been there before, although with me, it was in a Walmart parking lot. Seeing the charger was in use for a long charging session, I flipped around and got back on the highway and headed towards the Burger King.

There are Vultures in the Burger King Parking Lot

You would think vultures in the parking lot would be a bad omen, but the charger wasn't in use and it was working just fine. Got my charge, along with a Whopper, Jr. and a red Hi-C. I thought red Hi-C was closer in flavor to fruit juicy red Hawaii punch, but this red drink was weak, barely more than water. Disappointing. I spent 24 minutes at the Burger King and the charge cost about $9.

Walmart: The EV Oasis

My main stopping point to charge on the way to Atlanta is a Walmart in Forsyth, Georgia. It's a good place to stop. It's got four chargers that are usually working, and there are a Popeyes and a Jersey Mike's within walking distance. I've gone into the habit of shopping at the Walmart while I charge, buying snacks for the hotel room and reveling in my ability to purchase a USB cable without having to get someone to unlock the case like I would at a Savannah Walmart. Today one of the four chargers was broken, but fortunately one person charging was walking out with their groceries, so I only had to wait a few minutes for them to get the kids in the car and pull away. I did my shopping. (Water, comb, USB cable, Skittles) and was on my way in about 27 minutes, with the charge costing $13.

I Have No Concept of Time

The two charges to get my car to Atlanta added a little under an hour to my trip time. But because I'm doing something while charging and not just sitting in the car waiting, it doesn't feel like any time is being added. And stopping at the Walmart actually feels like I'm saving time. I don't have to find snacks near the hotel, and I don't have to remember to go shopping before I leave. I'll even do a lot of my grocery shopping on the way back while I charge, saving myself the dreaded post vacation trip to the store to buy something to have for breakfast the next morning.

You Are The Navigator

Today's trip was about as good as it gets with EV travel. There was only one broken charger, and didn't impact my charging time all that much. The charging infrastructure for EVs is very spotty. There are certain places in Georgia (like a lot of West Georgia) where it would be difficult for me to go because I have no place to charge my car. But in the strange way, the lack of reliable charging infrastructure is one of the fun things about owning an EV. When I was choosing where I wanted to go this summer, access to charging was an important part of things. It makes you look for places that you might not actually think of going. It feels like driving back before GPS, when you had to plan your route in advance using the atlas you kept in the backseat.

#1000WordsOfSummer #EVRoadTrips

I have an email job. During the school year, I’ll visit schools and work with teachers, but it’s still an email job. Even when I’m in schools, a large chunk of my time is spent responding to emails or sharing links to documents through emails or deleting emails from salespeople who think that I actually have a say in how the district spends money. During summer break, I still work, and I spend even more time at the computer. And this summer, I’m finding that email jobs and #ThePark don’t mix.

I can’t type on laptop keyboards anymore. The keys are too light and flat, and I make too many mistakes when typing. That’s why I got my beloved tiny keyboard. But the tiny keyboard is a travel keyboard. Typing on it for too long causes too much tension in my neck and shoulders. Part of this is probably due to my bad posture, but the tinyness of the keyboard also makes it difficult to open up and relax while typing. When I’m out and about, it’s fine because I’m not typing for long stretches. But in the summer, when I’m at my desk for 100-hour days, the tiny keyboard is just too tiny. So I did what anyone whose meds encourage compulsive behavior would do: I spent too much money online shopping and bought a split mechanical keyboard kit.

split keyboard with flashing LED lights

I have been practicing on the split keyboard for over a week, and Reader, I still cannot type. The placement of my hands feels more comfortable, but the struggles I’m having learning to type on this thing is causing more tension than typing on the tiny keyboard for an extended period of time does. Although I do type slightly faster on the split keyboard, 49 wpm vs 44 wpm on the tiny keyboard. But that’s still way too slow for someone who spends all day typing. T And the splitness of the split keyboard has shown me how much worse the right side of my body perform. It makes me wonder how much longer I’ll be able to do an email job.

Now I know you’re probably saying, “But Shawn, what about voice typing?” Voice typing isn’t ready for prime time yet, especially considering that #ThePark can lead to a softer voice and slurred speech. My hope is that AI will actually do something useful and make voice recognition and context-aware voice control more effective. Either that or I figure out how to type using just my left hand on half of a split keyboard. Hmm, that sounds like something I can skip sleeping to read about and eventually spend too much money on.

367 days ago I was diagnosed with The Park. Here is my review:

It stinks! Would not recommend. Very bad time.

The company I bought a tiny keyboard from asked me for a review of it for their website. I don’t know if they’ll actually post it, so I’m posting it here as well.

I have a keyboard problem. The Park sometimes makes it a struggle to type on my laptop keyboard. The keys are too light and too close together, and when my hands shake, I accidentally type double keys all the time. But I didn't have the same problem with my old Das Keyboard mechanical keyboard at home. I realized I needed to get a mechanical keyboard for work, too. But it had to be portable. It had to be something I could toss my bag and carry with me.

First I bought a Keychron K7 low-profile wireless keyboard. It was okay. But I didn't like the low-profile keycaps, and I didn't like the setup of the function keys. I couldn't customize it to work the way I wanted it to. So I began looking into keyboards with customizable layouts. And eventually that led me to the Atreus.

I liked how it was small, portable, hot swappable, and completely customizable—everything I was looking for in a keyboard. And it was fairly cheap compared to some other customizable keyboards that could run $200 to $350. So, I bought one. Bare bones. No switches, no keys. Just a tiny keyboard base. And ever since then, I've had a tiny keyboard problem.

First, it was the switches. Do I want brown switches, red switches, box brown switches, clicky switches, tactile switches, linear switches? Do I want a mix of switches on function keys versus letter keys? I’ve currently settled on Akko penguins for the letter keys and Gateron Aliaz for the thumb/function/layer keys. Silent, and I don’t accidentally hit space too many times in a row.

And then there are the keys. XDA, DSA, OEM, Cherry. I don't know what the differences between them are, but I've tried them all. Or most of them, anyway. Thankfully, a certain online retail behemoth has a friendly return policy or else I’d be swimming in unused keycaps. I’m currently using a dirt cheap set of Cherry profile keycaps.

But the caps and switches are just the tip of the iceberg. I can’t stop reconfiguring this tiny keyboard. There are only 44 keys, so you have to have layers, but how do you want those layers? Do you want the layers the way the Atreus comes with as default? That’s too easy. You need your own layer setup. So you customize it. You tweak it. You break it. You fix it. You customize it again. You think you’re happy with it. You think you’re done. But you’re not.

Soon you're constantly tweaking and tinkering. You think you have it all figured out and perfected, but then you read about miryoko layout or home row modifiers or Colemak-DH or all sorts of other ways you can configure the keyboard. And the tinkering cycle begins anew.

And don’t even get me started on whether you should keep the kaleidoscope firmware or flash it with QMK. I don’t even know what any of that means, but I always come back to kaleidoscope and chrysalis

So what do you get from all this tinkering? You get a tiny keyboard that is entirely yours. A tiny keyboard that takes up no space in your bag, but that lets you type without hunching over your flimsy work laptop keyboard. Combine it with a portable laptop riser and it will change your mobile work life.

There will be some growing pains when you adopt the tiny keyboard lifestyle. I’m still getting the hang of the tiny keyboard, so my typing speed isn’t what it could be yet, but my hands don’t get as tired from typing. Even with my slower typing speed, it’s a more comfortable typing experience, which is invaluable considering how much time I spend on a computer at work. But most importantly, my tiny keyboard is a trustworthy friend. My lil buddy. My boon companion. The tiny keyboard will always be there for me, because it can, with a little tweaking, become whatever I need it to be. Possibly the best $109 I’ve ever spent.

I have what is called Young Onset Parkinson’s Disease (YOPD). I don’t know what the cutoff for “young” is, but I was diagnosed when I was 45. Today I attended my first big Parkinson’s event: the Georgia Optimism Walk. (Other diseases get to race for a cure, but people with the Park aren’t very fast and there isn’t much hope for a cure, so we just get to walk for optimism, I guess.) There were a lot more people without the Park than I expected, people in athletic gear who came to walk with vigor, not slowly clomp around like a Frankenstein. And there were a lot of old people. People with canes, with wheelchairs, with those little walkers that you can also use as a chair. The majority of the vendors were for elder care/assisted living/hospice companies. It was a glimpse into my future. And at first it unnerved me.

Since being diagnosed, I’ve struggled with staying positive about my future. I think about my uncle, who had Parkinson’s and who died way too soon. I think about growing old alone and wonder how long I will actually be able to live on my own. I worry. But after attending the walk today, I came away actually feeling motivated about my long-term future for the first time in a long while. It was a big help seeing people, both with and without the Park, being happy and energetic and motivated. It felt good being outside, which made me feel more confident in my summer goal to go camping and to spend more time outdoors. My life will never be what I thought it would be even just a couple of years ago, but I feel better about what it can be. And I found out that if I raise enough money, I can get a medal. I want that medal. I will use all the resources at my disposal. I will make a difference for people with the Park. And I will get that medal.

#Parkinsons #Optimism #BonJoviBridge